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Moving on

Recovery can sometimes take quite some time, although everyone is different. It is fair to say that we probably know the least about longer term recovery. This is largely because the current research recommendations are to follow patients up for "at least 6 months" after Intensive Care. Also, much of the research that has been done has tended to use questionnaires which, although very useful, may not actually tell us very much about what recovery is like for patients in their everyday lives.

Having spoken to a number of patients at one year after hospital discharge, however, it seems that while some may have lingering physical and psychological issues after being in Intensive Care, many have learned to live with them. The main focus at this time would appear to be keeping well, maintaining a healthy lifestyle and getting out and about. For some, the "anniversary" of their time in Intensive Care can prompt them to reflect on their emotional journey. In this section, we've provided some links to general information and advice. We hope you find it useful.

 

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Web Link: 10 today: videos of 10 minute exercises

This link will take you to BBC Radio 5's webpages, where you'll find 10 short videos that will help you get moving and stretching. The exercises are gentle and easy to do at home.

Web Link: ACAS Employment Advice Website

Worried about your employment rights after a stay in the ICU and during your recovery? The ACAS website is easy to navigate, full of information and will give you the lowdown on your rights as an employee.

Web Link: Accessing Physiotherapy after an ICU stay

Most often, those recovering from an ICU stay will need some degree of physiotherapy. Here is how to access it where you are.

Web Link: Age UK Coronavirus Advice

Advice for the eldery on managing Coronavirus related issues. Includes advice on safe shopping, accessing health services and support bubbles.

Web Link: Attendance Allowance

Attendance Allowance is a benefit for people aged 65 or over who need help with personal care (washing,dressing or eating, for example).Some patients need this type of help in the first few weeks and months after they get home.This link will take you to the NHS Choices web page, which will tell you more about what this allowance is, who is eligible and how to claim it.

Web Link: BBC news on the lasting mental health impact of ICU

This is a very short but relevant article from the BBC’s health page, outlining the findings from a recent UK study into the mental health issues some patients face after Intensive Care.

Web Link: BBC News page on support after patients go home

This is a very short but interesting and relevant article from the BBC’s health page. It outlines a recent UK study involving over 300 patients, the physical problems they faced and wide variation in support they received after they got home.

Web Link: Befriending Service

Feeling lonely and isolated after being discharged from the ICU unit is very common. Especially if you live alone. Perhaps, enlisting the services of a Befriender could help alleviate some of these feelings. Befriending offers supportive, reliable relationships through volunteer befrienders to people who would otherwise be socially isolated. Around the UK, there are befriending projects which organise effective support for children and young people, families, people with mental...

Web Link: Blog from an ICU survivor (Louise)

This link will take you to Louise's blog site, which she regularly updates. Louise was admitted to the Intensive Care unit of Derriford Hospital, Plymouth in November, 2018. She spent 13 days in the Intensive Care Unit, due to a perforated oesophagus (gullet) and another 71 days in hospital before being discharged home to her family. Louise writes in a very authentic and compassionate way about her experiences of having ICU delirium (strange or distressing dreams or hallucinations) and...

Web Link: Blood Cancer UK Shielding Advice

Advice for those who are vulnerable and shielding including how to arrange for food deliveries.